I am receiving disability for being mentally ill. I had tried to make my life better and get off of disability benefits. I went back to school and finished my A.S. in music, I got a job, and I got married. Because I got married I lost my Medicaid, which meant I needed a new therapist and psychiatrist. I thought since I was on my way out of the system I would be losing Medicare also. So, I decided to look for a new Dr. also.
First I went to Liz, for psychiatry. I wanted to have kids someday so I asked her to put me on a med that wouldn’t be as prone to cause birth defects. When I saw her I told her it was only going to be for psychiatric treatment. She said it was fine. The last thing i said is a key in this story. Well, she started me on new meds, and mentioned that she did therapy. I thought well I will try your therapy then. I went to her for therapy and she was abusive. I had another appointment set up for therapy and after about a week away from her office I went to cancel it. So I told her politely I would only like to see her as a psychiatrist. She said that that was impossible and she only sees patients who see her for both therapy and psychiatry. Remember the key to the story now. She started my first session saying it was okay to see her for only psychiatry and then changed her mind. The problem is she changed her mind after putting me on new meds. They say not to quit your medication without a doctors approval.
If you don’t know anything about the mental health system, then you don’t know the fact that it takes at least a month to get in to a new psychiatrist, if you haven’t seen him before. So I desperately called around and could find noone. They either didn’t take my insurance or weren’t accepting new patients. So I’m on new meds and know they will run out after a couple of months. I then come down with the flu. And within a week am moving. So I feel horrible and am lifting boxes. I take a break and then I feel a sharp pain. something between my front pelvic area and my buttocks hurts so bad Ihave to sit down. I got to the only doctor I have at the time, which is a medical doctor. We can call her Sally. Well Sally takes a picture of my belly and says I am constipated. So I am over the flu but I am constipated, and that is why my stomache still hurts, and I am throwing up. She says if things don’t change come back, after of course trying some enemas and laxatives.
I am thinking I should just get another doctor because i have a job and I don’t want to switch several times. I thought I would be losing my medicare, and my husband hadn’t put me on his insurance yet. But he was going to within a month. So I thought I’ll wait if this doesn’t work and get a doctor I can have for a long time. That way I won’t have to switch several times. So I try the enemas, laxatives, a whole family serving size of prune juice, and fiber. I could barely go with all of that help. By the time i get to this new doctor, who we will call Kathy, I have been sick three months. I have been throwing up almost everything I ate.
I was optimistic. Kathy seemed to want to help me. I told her what was wrong. By the second appointment I told her I suspected it was the new psych meds that had caused the constipation. She was going to have me taper them down a little and come back in two weeks. I decided if this was the culprit i wanted it out of my system as quick as possible. I know that i still needed to taper down. I tapered down faster. I thought she was tapering me too slow. I didn’t want to be constipated for another two months. I only had enough for a couple weeks anyways, and no refill, because I couldn’t find a psychiatrist. I decide I will just quit my Zoloft, since I am quitting the other med, and I will just forget about psychiatric meds. I decided I was going to live my live naturally, and un medicated. Then comes the second visit.
The second visit I tell her I am off my meds and I don’t want to see a shrink ever again. I told her I would be fine. She decides to have me get a cat scan of my belly. I am also given a pregnancy test sometime during the beginning of this all. People hear nausia, vomiting , and sensitivity to smells and think you are pregnant. I believe that was the first thing done. So I go to have a Cat scan done. By this time I have quit my job because now I am having sharp stabbing pains and I can’t seem to do anything without being in pain. My stomach hurts so bad I feel like I can’t move.
I go to the get the cat scan. I take the liquid and am fine. I got to lay down on the table, and am just emotionally upset. I am getting to where just going to the doctor makes me want to cry. Well they ask if I am allergic to iodine. No I say. The contrast they inject me with has iodine. They need it in my system to take the picture. I am told to follow the direction the machine gives me. They leave the room. The table moves and stops. It says something like on the count of five take a deep breathe and hold it. then it counts to five. It was something of the sort I did it maybe four times. Then it was over. They walked in the room and all of the sudden those sharp stabbing pains were no longer small. My feet were in so much pain I couldn’t move them. I don’t think i ever hurt so bad in my life. I was scared. They tried to tell me it was probably just a cramp. My god, if a cramp felt like that everyone in the world would be unable to move. I knew it wasn’t a cramp. It started moving up my legs and I could feel it in my knees. I was panicking. I didn’t know what was going on. They just sat there and tried to calm me down and in about 5 to 10 minutes I could move again. I don’t know what happened. I don’t know if it was an allergic reaction or not. All I know is it hurt so bad I screamed. I think I have a high pain tolerance too. I have had several body piercings and a big tattoo. The tattoo hurt a little. Some people can’t handle the pain of a tattoo. Well I went home to wait for the results.
I went back to Kathy. She said the catscan was normal and we made another appointment. She said we would do a pelvic exam. At my new appointment she got distracted. I asked if we were going to do the pelvic exam. She forgot and did a really quick thing that I wouldn’t call an exam. She put her finger up me and felt my tummy. Then she made me take another pregnancy test. Why take a test after a pelvic exam. Why not before, and it is not ruling anything out. I took it because the doctor asked. Then I guess they needed time to decide what to do, so no appointment was made. I receive a letter that is one line. It says something like,” What is wrong with you is outside of our scope of practice.” So I feel like there saying we don’t know what to do. I decide to make an appointment with an allergist thinking maybe they can figure what is wrong. Maybe I will be lucky and it will be some sort of food allergy.
I spend several weeks going to the allergist and during one of those weeks I end up in the ER because now I can’t breathe. They tell me since I have an appointment with the allergist already I should have them do a breathing test. The allergist finishes all the tests on my next appointment. I have asthma now, and allergies to mold, tomatoes, lobster, and dust mites. I am put on asthma and allergy meds. I stop eating tomatoes, get allergen covers for my bed, and never could afford lobster. It doesn’t matter though. I am still sick. I keep trying to figure out what to do during this whole time. Then I think usually they give you a referral or some direction. so I call Kathy’s office. I ask them why they didn’t give me a referral. They say didn’t you get the letter. I say yes. They tell me i need to find another doctor because they don’t know whats wrong.
I get discouraged because I know another doctor will just run all the same tests. I think what I need is a specialist. Then I decide i should set up an appointment with a gynecologist and a gastroenterologist. I get an appointment with the gynecologist. The g.i. doctors office says they won’t see anyone without a referral. By this time I am sure it is either gynecological or gastrointestinal related. I decide i will call Kathys office again.
I call the office and ask for a referral to the G.I. doctor. The receptionist said that she’d tell the nurses aid what I want. At this point I wanted to make sure I wasn’t going to waste my time and not get what I needed. I said So your going to tell her, but will it get done. Yes, we will have her call the specialist and she will fax over the information. Then she goes to hang up and I say “Wait, don’t you need the number.” She tells me they have it. So I say thanks and get off the phone. I wait a week. The gastro office said they would call me when the appointment was made. NO calls and a week has past. By this time I am thinking Kathy is not doing her job. So I call the Gastro office first and ask if they have received my information. They say they have no records on me and no one has sent them anything. I call Kathys office again.
I am mad now, but trying to not explode. I call and ask why they are not doing there job. I explain that it has been a week and I still have no appointment because they did not send the information. The receptionist tells me that they sent it and it just takes awhile to get an appointment. I explain that I called the Gastro office and they never sent my records. I asked why they are not doing there job. She says she will talk to the doctor and they will call me back. I have so many things on my plate I am not around when I get the call. Well I listen to the message. It says something to the effect of “We sent you a letter.You should’ve received it certified mail weeks ago. You are no longer our patient.” So somehow the letter that said the problem was outside of their scope of practice really meant you are not our patient. Then why not say I am not their patient. When were they going to let me know that If I wanted the basics of birth control, or anything else that I wouldn’t be able to come to them. I wondered why they dumped me as a patient. i couldn’t understand it. I was nice to them. I didn’t yell. I was optimistic when I was going to them. Now I was just angry. I felt like they just ordered the most expensive test and then kicked me to the curb. I had set up the gynecologist appointment though.
I went to the gynecologist and gave them my insurance cards. I had explained my insurance over the phone when I made the appointment. They see my cards and say we cannot see you. Of course I am upset. I waited weeks for this appointment and they are saying they can’t see me because of my insurance. When I was on the phone they said they could see me. I am angry and tell her this. Then she says “Have a nice day.” She wasted several weeks of my time, when i could be on my way to possibly feeling better. And now I have to make another appointment and wait another several weeks. And she tells me to have a nice day. I was furious. I ask my husband to ask a coworker if they have a good doctor that they have seen for awhile. Picking a person out of the phonebook is not working. I get a name and make an appointment with someone we will call Sue.
By this time my mental illness is getting too me, or perhaps maybe just life. I’ve been sick five months. I have been afraid to sleep because i fear I will not wake up. My husband and I have been having fights. I feel he is very unsupportive. If I am angry at a doctor and tell him he gets angry at me and starts yelling at me. I think I need a therapist to talk to so that I can tell her why I am scared of dying and expres my anger towards the doctors. I start calling down our provider list. I get someone on the phone and it is the therapist herself. I will call her Bev. Bev sounds nice and says she thinks she can help and I think she will be able to. I set up an appointment.
I go to Bevs office. The first appointment is always an intake. They ask you all these questions about your mental health history. They ask you if you were abused and make you bring up your trash. She said they would do the intake and she would talk to her colleague about how to best help me. During the intake she asked twice if I had trouble remembering. I am now wondering if that was some sort of trick question. I am trying to be polite so i just answer both times and say no. I wanted to say, no but you do. Well I express my concern about my insurance. I tell her I might not be able to come back to her, because I thought our insurance only had a 1500 dollar deductible and not a 3000. She said she would see what they could do. She was going to call me after she talked to her colleague. I waited a week and she told me she couldn’t see me anymore. I asked why. She said if I was going to be struggling to pay she thought it better I see someone else so I would not have financial trouble. I told her it was okay and our insurance was fine. I told her I had just been confused and my husband explained it to me. I told her we had plenty of money to see her with. I was just confused and i will be fine financially. She said she couldn’t see me anyways. I asked why. She said because in my history I have a suicide attempt. I say I am not that person anymore. She said it doesn’t matter. Because of my history she can’t see me. I ask her if she sees people for anger issues, depression, and so on. She says yes. Then I say why can’t you see me. She brings up my inability to pay like three more times. I keep explaining to her i can pay and it won’t be a problem and then she reverts to my history being the problem. She recommends I find someone off of my provider list. I was extremely mad at this point. I said “Where do you think I got you?” I say on her site it says they deal with crisis intervention. She says they do. I explain that crisis intervention is usually for people who feel suicidal. She says yes. Then why is it she cant see someone who has a suicide attempt in their history. Oh well I decide and hang up. They won’t help me.
I eventually make it in to see Sue. It is someone I am hoping will be my physical doctor. I explain to herafter her telling me I seem angry and need a therapist, why I am angry. I tell her that the doctors I saw were quacks. That they didn’t help me. She took it personal and got mad at me. She acted as if I had called her a quack. I had to explain to her that I wasn’t insisting she was a bad doctor. I told her I didn’t know what she would be like. I told her I was offended by her suggesting I need therapy because I have a diagnoses. She said she just thought it would help with my anger. So now that we understood eachother I was feeling a little better. She tells me she can’t help me. She already knows that she won’t be able to make any more progress in her office than has already been made with my previous. She gives me the name of a gynecologist so I can make an appointment with them. I assume when she left the appointment was over. It sounded over and I go to leave. The receptionist says, “Are you sure the doctor was done with you?” This confuses me so i stay and wait until the doctor comes out. I was going to thank her if she was done. Well the docotr comes out and i ask if we were finished. She looks at me as if to say,” why aren’t you out of my office yet. Get the hell away from me!” But really just says yes. It was the tone of voice and body language that madde me feel so hated. I thought she had gotten over the fact that she took my anger at other doctors so personally. I get home and my husband tells me i di it all wrong and yells at me. I wouldn’t even gone into how inadequate the doctors were if she had made it sound like I had no right to be angry, or depressed. She also made it sound like I was only depressed because I was mentally ill. I felt I had to explain myself. I guess I shouldn’t have though.
I feel like no one is helping me. I am tired of calling number after number to just have my attempts fail. I am extremely hopeless. I am constantly fighting with my husband. I finally say everyone wants me dead. I can’t get the help I need and I say I am fed up and going to kill myself. He calls the cops and I end up in the hospital psychiatric ward.
In the psych ward I explain to the doc that my marital troubles along with being sick for five months and not getting the help I need has drove me to this point. They say they can help. I tell them I want a therapist but I can’t getmyself to call for help anymore and I want a dotor but I am tired of looking. they say thy will take care of it. They send me bcak to the doctor I started with. Now I am thinking it doesn’t matter because at this point I am not going to lose my disability. I am thinking even if I was happy I would still probably get to keep my disability from my physical problems. So I go back to the first doctor. They tell me they offer therapy though them, which I didn’t know. I get released in two days.
I go to the doctor and get told to leave a stool sample and to try some meds to rule out it being an ulcer. They say I should see a therapist. I get angry because I haven’t been acting angry. I haven’t been acting mental and I am told I need a therapist. Once again my history of mental illness wont let the physical doctors just give me the physical help I need. It doesn’t matter though. Now I know I need a therapist anyways and I tell her I already have an appointment.
I go to the therapist. She doesn’t listen well enough to what I am saying. And on top of that I find out I can only see her a handful of times. They only offer short term help. So i am upset at this too.
I go to turn in a stool sample. The doctor calls me that morning and I am told that my blood tests are normal and they forgot to tell me i have to get my stool to the lab within two hours of going. So eventually I get the sample and bring it to the lab. I explain how hard it was. The lady says that she knows because she had to get one from her kid and it’s hard to keep the diaper material and urine outr of the sample so it doesn’t get ruined. Then i told her i got urine in the sample. She says they will see if the sample will work but gave me some more tools to get another sample in case this one was ruined. Luckily it turned out to be enough. I am constipated and have to go during their schedule of 8-3 so I can turn it in. And I have to aim into a container. It was hard and I am glad it was a good enough sample.
Meanwhile my mental health continues to decline and I know I won’t be able to see the therapist. I decide I have had it. The world does not want me to get better. I have a label and they expect me to be that label. So I thought I’d give them what they want, a dead schizoaffective. I decided to kill myself. I had been trying to succeed at other things during this time and had been treated badly their too. I joined a group hoping for friendship and was kicked out. A lot of things like that were happening on top of everything else. I took it as a sign that no one wanted to help me. I felt somehow they wanted me too be my label. I felt the world was begging me to kill myself. So I took action.
I sat on the edge of a cliff one day thinking I would jump, but ended up coming home. Then we went camping. All summer I had wanted to go camping. I wanted a couple of days to relax with just me and my husband. His family managed to mess up the whole summer. We never got to go camping. Now it is september and we go camping. Everything went wrong. We fought and we ended up camping under a bees nest. I wanted one perfect day. I wanted a day of calm. I wanted a day with no fights. I wanted a whole day where we could read and enjoy being away from people, and he could show me how to crochet. It didn’t happen. I tried to kill myself in the woods but my way was too hard. I just ended up cutting my arm. We got home from the trip and once again we gotbombarded by his family. We had a one week vacation. His family knew we were on vacation, but wouldn’t leave us alone for one week. I feel like they have to be everyewhere and if we had had a honeymoon his mom would want to follow us to the honeymoon suite. There was no relief. I needed one day and I didn’t get it. When I got home I went on a quest to find the easiest way to die. I bought a bagful of sleeping pills. I won’t tell you how insane I got. I had so many bad ideas. Idon’t want to disturb anyone with the images. I came home. One last chance. I told my husband I couldn’t do it because I loved him too much, but if I didn’t get help I wouldn’t be able to stay alive. I told him to take me to the hospital.
I didn’t get locked up in the psych ward. I told them I had the stuff to do it and that I was going to do it. They gave me the option of being locked up where I could only see my husband on the weekends and would receive no medical treatment or to go home. I went home. If I was locked up and they want me too cheer up, it wouldn’t matter if I was happy if I was just going to die in their of my physical ailments. So it was as if they were saying we can save your mind while your health kills you or you can go insane and try to improve your health by going home. I went home. I am still in a very bad mental state. At least the doctor there gave me a couple pain pills. Did you know that I went five months before I even got something to help with the nausia. I have been struggling to keep my food down for months. It helps a little. I didn’t mention that on top of all of this our neighbors who live upstairs continuously make loud obnoxious noise. They are mean. They do things like intentionally parking there car so I can’t get out, when they could just park beside me. They are part of my misery. It sounds like someone is throwing bowling balls on the floor half of the time. But I won’t get into that.
So this is a summary of my dealings with the medical community within the last six months. I will update the story as I go along. I hope you can see some of the inadequacies. I hope I have done a good enough job explaining. There is one more thing. I suspect I may never be physically well again. I suspect it is because Liz put me on meds that ruined my body. I could be wrong but my symptoms happened right around that time. Next blog I will write what I have learned from this, and ways i believe you can protect yourself. There are many problems in the medical system. I will explain some of the problems I have seen and how to avoid some of the things I went through. If I knew what I knew now I would’ve done things differently. Until next time,
Jennifer
Possibly-related Articles:                                        
(auto-generated)